Iowa

President: Michael Fisher
Email:      hdsaiowachapter@hotmail.com
Phone:      712-523-2291
Fax:         712-523-3154
Address:   311 Main Street
                PO Box 3

Bedford, IA 50833
Website: None Listed

Help Line: 866-248-HDIA [4342]

Newsletter "The Iowa Connection"
Call to be placed on mailing list.

Center of Excellence

HDSA Center of Excellence
The University of Iowa

Iowa City, IA, 52242

Center Hours: Monday, Wednesday and Fridays 9-6PM

Clinic Hours: 2nd Tuesday of each month

Phone: (319) 353-4307

Fax: (319) 353-3003

Clinic Directions:

Finding the clinic (Elevator C to the 3rd floor of the hospital):
http://www.uihealthcare.com/infofor/patients/directions/elevatorc.html

Services
The team approach used at the UIHC integrates a full range of HD services. A routine visit allows our professionals to assess the three primary areas affected by HD. A motor assessment, completed by a neurologist, will evaluate movement (chorea), posturing, rigidity, and balance. A psychologist will evaluate functional and behavioral aspects as well as current mood and level of functioning in day-to-day activities. A cognitive assessment is then done to determine strengths and weakness in thinking processes.

We also assess what services patients and families may need (speech therapy, genetic counseling, etc.) and ensure that these are conveniently provided. In addition to providing office visits and follow-up are, the clinic serves as a resource for anyone needing HD information.

For Below Services & Info on HD

Contact:      Elizabeth Penziner, M.A., C.H.E.S.
Email:        elizabeth-penziner@uiowa.edu
Telephone: (319) 353-4307
Fax             (319) 353-3003

HELPLINE

Phone: 1-800-777-8442 x34307
Hours: 24/7
Services: Referrals and resources

SOCIAL SERVICES
Assistance with SSDI procedures, referrals to statewide agencies
Hours: MWF: 9am-6pm

FAMILY SERVICES
Family counseling, work with HD and youth groups

EDUCATION & OUTREACH
In-service training on HD care is offered on an as needed basis

(8 conducted in 2001)

HD Center of Excellence Personnel:

Neuropsychologist and Co-Director-Jane S. Paulsen, PhD jane-paulsen@uiowa.edu
Neurologist and Co-Director-Henry Paulson, MD, PhD
Neurologist and Co-Director-Robert Rodnitzky, MD
Psychiatrist-Judith H. W. Crossett, MD, PhD
Pediatric Neurologist-Katherine Mathews, MD
Program Coordinator-Elizabeth Penziner, MA, CHES
Pharmacist-Joe Mac, PharmD
Social Worker-Rosie Wilhelm, MSW, LISW
Rehab Therapist-Bruce Miller, PTMA

Physical Therapists
Melanie House, PT
Peggy Saehler, PT

Speech Pathologist: Ann Michael, PhD

Clinical Dietician
Amy Gertz, RD LD
Janet Johnson, MS

Occupational Therapist: Kim Kean, OT
Nurse Specialist: Geri R. Hall, PhD, ARNP, CNS, FAAN

Research Assistants
Michelle Benjamin, BS
Carissa Nehl, BS
Laura Stierman, BS
Brett McCormick, BA

University of Iowa Clinical Outreach

Services: General Neurology
These clinics offer evaluation, consultation, and treatment for patients with neurological disorders.

Grinnell Regional Medical Center
210 Fourth Avenue
Grinnell, IA 50112
Phone: 641-236-2925
Schedule: 2nd, 4th Tuesday, Every Thursday
Physician: Edward Aul

Knoxville Area Community Hospital
1002 S. Lincoln St.
Knoxville, IA 50138
Phone: 319-356-2571
Schedule: Tuesday (varies)
Physician: Edward Aul

Genetic Testing Facility

University of Iowa
Regional Genetic Consultation Service
200 Hawkins Drive-2604 JCP
Iowa City, IA 52242-1083
Contact: Catherine Evers, RN, MA, Genetic Nurse Consultant
Phone: (319) 356-1160
Fax: (319) 356-3347

Genetic Consultants
Cathy Evers, RN
Janet Williams, PhD
Ann Muilenburg, BSN, MA

Physicians-HD Experienced

Other Iowa Cities-Need your input
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