President: Debbie Gomberg
Email: hdtri@bellsouth.net
Phone: (305) 274-7411
Fax: (305) 665-3038
Address: 12555 Biscayne Blvd.
North Miami, FL 33181
Email
Phone: 305-274-7411
Chapter Social Worker: 305-529-9588
Provides a 24 hour helpline and Social worker. Support meetings in Dade, Broward and Delray Counties
HD Medical Facilities
South Florida Huntington's Disease Clinic
University of Miami School of Medicine
Department of Nuerology
1501 NW 9th Avenue
Miami, FL 33136
Phone: 305-243-3530
Office Hours:
Neurologist Carlos Singer, M.D.
University of South Florida
Movement Disorder Center
Harbourside Medical Towers
4 Columbia Drive, Suite 730,
Tampa, FL
Office Hours:
FAX: 813-253-4456
Appointments: 813-253-4455
Specialty/ Research Interests: Movement Disorders: Parkinson's Disease, Huntington's Disease, Tremor, Dystonia, Botulinum Toxin Injections for Dystonia or Spasticity
Directions:
From Interstate 275:
Take I-275 to the Tampa/Ashley exit in downtown Tampa. Take Ashley to Brorein (which is just before the Tampa Convention Center). Turn right on Brorein Street. Take Brorein to Hyde Park Boulevard, and turn left on Hyde Park. Cross the bridge to Davis Islands, and follow the signs to Tampa General Hospital or Harbourside Medical Tower. A parking garage is available next to TGH and Harbourside. Valet parking for Harbourside Medical Tower is available in front of the building.
Physicians-HD Experienced Other Cities
(Hillsborough County)
Juan Sanchez-Ramos, Ph.D., M.D
USF Psychiatry Center
3515 E. Fletcher Ave.
Tampa, FL 33613
Appointment: Donna (813) 974-2309
Hours: Wednesdays, from 1:00 to 4:30 p.m.
(Pasco County)
Juan Sanchez-Ramos, Ph.D., M.D
Helen Ellis Medical Arts Center
2114 Seven Springs Blvd.
New Port Richey, FL (zip?)
Appointment: Marcy (813) 974-6022
Hours: 2nd Tuesday of the month, 9:00 a.m. to 4:30 p.m.
The Movement Disorder Society of Southwest Florida, Inc.
126 East Olympia Avenue
Bank of America Building, 2nd floor
Punta Gorda, FL 33950
Director: Sally Thimm
Email:
Phone: 941-833-8312
Clinic Opened 1/02, accepting HD patients.
OTHERS
Need your input
Locate a Physician-Florida
Florida Medical Network
Genetic Testing
University of Florida
Division of Pediatric Genetics
P.O. Box 100296
UFHSC
Gainesville, FL 32610
Contact: Heather Stalker, MSC, CGC
or Kory Keller, MS
Phone: (352) 392-4104
Fax: (352) 392-3051
University of South Florida
Regional Genetics Program
One Davis Boulevard, Suite 604
Tampa, FL 33606-3475
Contact: Pat Newkirk, MS, CGC
Phone: (813) 233-2726
Fax: (813) 233-2734
(Services state of Florida only), Prenatal Testing
University of Miami
Department of Neurology
1501 Northwest 9th Avenue
Miami, FL 33136
Contact: Dinorah Bateman, RN
Phone: (305) 243-6200
Fax: (305) 243-3828
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August 3, 2002
11th Annual Huntington's Disease Triathlon
National Sprint Championship
Activity: 1/2 Mile Swim, 13 Mile Bike, and 3 Mile Run.
Location: Key Biscayne, Florida
Phone: 305-971-4372
August 4, 2002
1st Annual Huntington's Disease Olympic Distance
Activity: 1.5K Swim, 40k Bike, 10K Run
Location: Key Biscayne, Florida
Phone: 305-971-4372
Support Groups
This group no longer meets. Please see other area meetings.
When: Last Tuesday of the month
Time: 7:30 pm
Where:
13644 SW 92nd Court, Miami
(just west of US 1 and the Falls Shopping Center)
Contact: Ann Graham, BSN
Email:
Phone: (305) 274-7411 or
Debbie (305) 255-7721
Facilitators:
Normie Kane, L.C.S.W
Ann Graham, B.S.N.
When: Last Tuesday of the month
Time: 7:00 pm
Where: Pinecrest Rehabilitation Hospital
East Day Room
5360 Linton Blvd
Delray Beach, FL
Contact: Gus
Email:
Phone: (954) 564-4375
Facilitators:
Dorothy Mihalyfi, Ph.D. Psychology
Gus Vazac (Hospice S.G. Training)
When: Fourth Tuesday of the month
Time: 7:30-9:00 PM
Where: Florida Hospital (downtown Orlando)
Welch Conference room near the cafeteria.
Contact: Pam Stewart
Email: hothomes@msn.com or
Contact: Vickie Fraser
Phone: 407-898-9515
Pot Luck Supper~Meeting
Call for dates and time
Contact: Cheryl Brown
Email: Cpwk1965@aol.com
Phone:
When: 2nd tuesday of the month
Time: 8-9:30 PM
Contact: Ursula Russo
When: 1st Thursday of each month
Time: 7-9 PM
Where: St. Joseph's Hospital-Conference Room C
(in the cafeteria corridor)
Tampa, FL.
Participants: All associated with HD.
Contact: Betty Minns
Email: bjminns@tampabay.rr.com
Phone: 813-239-3219
Directions:
I-275 to Martin Luther King Blvd. Exit #29
Go about 6 lights on West MLK Blvd to the corner of
Habana Ave. St. Joseph Hospital is on the right.
It's better to park in the lot by the front entrance
since the meeting room is near the lobby.
Nursing Homes-HD Experienced
Island Lake Center
Genesis ElderCare
155 Landover Place
Longwood, FL 32750
Phone: 407-830-7744
Fax: 407-830-7926
ManorCare at Lely
1000 Lely Palms Dr
Naples, FL 34113
(941) 775-7715
Florida's Nursing Home Guide (the Guide) is part of AHCA's ongoing effort to provide information to consumers faced with difficult health care decisions. This web site allows you to search for a nursing home by geographic region or by the characteristics of the nursing homes. En Espaņol
Nursing Home Watch - This information is available in two formats. The HTML version can be displayed within your browser, but is not formatted well for printing. The PDF version can be downloaded to your computer and viewed and printed from within Adobe Acrobat Reader.
The primary purpose of this tool is to provide detailed information about the performance of every Medicare and Medicaid certified nursing home in the country
State Long Term Care Ombudsman Program
Florida-State Long-Term Care Ombudsman
Florida State LTC Ombudsman Council
Holland Building, Room 270
600 South Calhoun Street
Tallahassee, FL 32301
Phone: (850) 488-6190
FAX: (850) 488-5657
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![[Link to www.fdhc.state.fl.us/nhcguide/guide_intro.cfm]](http://www.fdhc.state.fl.us/core_images/nhg.jpg){kind=small}