President: Pam Averman
Email: pamaverman@aol.com
Phone: (888) 779-HDSA
Fax: (703) 832-8123
Alt. Tel.: 724-833-8160
Address: PO Box 4102
Pittsburgh, PA 15202
Newsletter: Stepping Stones
OnLine Support Forum For Question on HD:
Toll Free Hotline: 1-888-779-4372
Mission:
Toll free helpline answered by Social Worker. Other services include In-Service trainings for Nursing Homes
Social Worker: Peggy Polito, MSW
Email: pegpolito@aol.com
Family Services: Betsy Gettig, MS, CGC
Email: bgettig@helix.hgen.pitt.edu
Caregiver & Support Groups: Len Stinebaugh
Family Advocacy: Ken Shepard Etzel, RN
HD CLINIC
University of Pittsburgh Institute for
Neurological Disorders
810 Kaufmann Medical Building
Pittsburgh, PA
Contact: Elizabeth Gettig
Clinic Co-Director
Phone: 412/624-3018
Hours: 1 - 4 p.m.
Days: 2nd Wednesday of each month
Services: diagnosis; medication for movement disorders;
cognitive and psychiatric evaluation and treatment; physical,
occupational and speech therapy; caregiver and social services,
nutritional counseling and clinical trials to HD patients.
Affiliated with the Huntington's Study Group
Genetic Testing
Facilities-Other:
Allegheny General Hospital
Department of Medical Genetics
11th Floor, South Tower
320 East North Avenue
Pittsburgh, PA 15212
Contact: Melissa Bourdius, MS
Phone: (412) 359-6388 or (800) 520-6433
Fax: (412) 359-6488
VA Medical Center
7180 Highland Drive
Pittsburgh, PA 15206-1297
Contact: Carol Schramke, PhD, Clinical Psychologist
Phone: (412) 365-5195 or (412) 365-5335
Fax:
Allegheny Hospital (psychiatry)
1427 Vine Street
Mail Stop 950
Philadelphia, PA 19102-1192
Contact: Melissa Bourdius, MS
Phone: (800) 520-6433
Fax: (412) 359-6388
University of Pennsylvania Medical Center
Clinical Research Building, Room 452A
415 Curie Blvd.
Philadelphia, PA 19104-6145
Contact: Lynn Godmilow, MSW
Phone: (215) 573-9161 or (800) 669-2172
Fax: (215) 573-7760
Physicians/Specialists
Center for Neurobehavioral Health
Regency Executive Offices
2173 Embassy Drive
Suite 366
Lancaster, PA 17603
Contact: Dr. Bob Stein
Psychologist in private practice
Phone: (717) 392-6061
Fax: (717) 431-2014
Phone:
Business Hours: 8:30 - 5:00, Monday - Friday
With occasional evening and Saturday appointments
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Special Notices
Separate support groups held for persons with HD,
persons At-Risk for HD, and Caregivers
Meetings held in Greensburg and in Beaver,
call for details
Western PA
Family and Friends Meeting
When: 1st Thursday each month
Time: 7-9 PM
Where: Civic Building
200 Ross Street
Downtown Pittsburgh
Contact: Peggy Polito, MSW
Email: pegpolito@aol.com
Phone: 1-888-779-4372
Participants: All interested in HD, Caregivers,
Persons At-Risk, Persons with HD
When: 4th Wednesday each month
Time: 7-8:30 pm
Where: Behavioral Science dining room
Robert Packer Hospital
Address:
Sayre, PA.
Contact: toll free 1-888-4GUTHRIE (1-888-448-8474)
Participants: A support group for patients and families of
patients who have have a neurologic disease that causea
a long-term disability.
Nursing Homes
HD Experienced
Need your input
State Long-Term Care Ombudsman
PennsylvaniaState Long-Term Care Ombudsman
Department of Aging
555 Walnut Street, 5th Floor
P.O. Box 1089
Harrisburg, PA 17101
Phone: (717) 783-7247
FAX: (717) 783-3382
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