Support Groups - See next column
Genetic Testing Facilities
University of Kansas Medical Center
3901 Rainbow Boulevard
Kansas City, KS 66160-7314
Contact: Carolyn S. Gray, RN, Neurology Nurse Clinician
Phone: (913) 588-6983
Fax: (913) 588-6965
Hereditary Neurological Disease Center
654 North Woodchuck
Wichita, KS 67212-3555
Contact: Gregory Suter
Phone: (888) 232-4632, (316) 721-9250
Fax: (316) 722-2710
Physicians-HD Experienced
NURSING HOMES
State Long Term Care Ombudsman Program
Kansas State LTC Ombudsman
Office of the State Long-Term Care Ombudsman
610 SW 10th Street, 2nd Floor
Topeka, KS 66612-1616
Phone: 785-296-3017
Fax: 785-296-3916 |
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Special Notices
Support Group Meetings
When: 3rd Tuesday of the month
Time: 7:00 P.M.
Location: Trinity Lutheran Church
63rd and Nall
Shawnee Mission Parkway and Nall
Shawnee Mission, KS.
Contact: Call Debbie Peek
Email:
Phone: 816-455 4143
Participants: All assoicated with HD
When: To Be Determined, Call for info.
Lathrop Health Care Center
Contact: Margaret
Email:
Phone: 816-740-4258
Participants: All associated with HD
When: 2nd Thursday of the month
Time: 7:00 P.M.
Location: Southgate Village
4101 SW Martin Drive
Topeka, KS
Contact: LeVone
Email:
Phone: 785-235 3282
Participants: All associated with HD
This info is from 9/99. Add note to Guestbook if not current
Donald J. Allen Memorial
Huntington's Disease Clinic Association
2721 Boulevard Plaza
Wichita,KS 67211 USA
Toll free: 1-800-759-0135
Phone: 316-684-3443
Year started: 1987
Information for: affected individuals families of affected individuals the public or media professionals (e.g., clinicians, teachers)
Support: peer support professional counseling crisis intervention, medical referrals, referrals for non-medical services
Services: peer counseling speakers advocacy
Research: registry of affected individuals; linking researchers and families
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