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Note: Go to your  State Pages for information on whether
there is an HD Center of Excellence located there.
What Is An HD Center of Excellence?
Centers of Excellence are stable regional centers providing high quality clinical care and services to individuals affected by Huntington's Disease (HD) and their families. In addition to clinical
and family services, Centers of Excellence provide professional and lay education and are involved in HD clinical research.
Centers of Excellence are designed to provide comprehensive multidisciplinary diagnostic and therapeutic services for HD individuals and their families. Services are centered around an organized HD clinic
in which an individual's needs are determined; plans are made to fulfill those
needs and sufficient follow-up is provided.
HDSA Centers of Excellence are being established at strategic academic institutions throughout the United States to complete an HD network of resources and referrals. There are currently 16
centers across the United States, with plans to expand the program to 25 by the
year 2005.
Centers of Excellence's are supported through your donations
and funding raised by HDSA Chapters.
Center of Excellence Celebration of Hope Dinners
Celebration of Hope events are held annually across the country in support of the HDSA Center of Excellence program. These gala events bring
together the community served by a Center or potential Center and demonstrate the positive
effects an innovative program can have on a region.
For More information about the Celebration of Hope Events, or the Center of Excellence Program, contact your local HDSA Chapter or the National Office at 1-800-345-HDSA or email at
hdsainfo@hdsa.org
How Do You Become an HDSA Center of Excellence?
Potential programs must meet a rigorous standard of established criteria to apply for funding as an HDSA Center of Excellence. Applications are reviewed each year by a national panel of experts. Sites are chosen on their proven ability to meet the needs of the HD population
as well as their ability to expand services. The Core Services offered by the
HDSA Centers of Excellence are:
- Medical Treatment by Neurologists specialized in Movement Disorders
- Speech, Physical, and Occupational Therapy
- Genetic Counselors and Genetic Testing Services
- Trained Social Workers available to assist families
- Network of Regional Referrals for HD care
- Opportunities for participation in HD research
Where are the HDSA Center of Excellence Programs? |
ALABAMA
HDSA Center of Excellence at
The University
of Alabama at Birmingham
1600 7th Ave. South
Ambulatory Care Center, Suite 516
Birmingham, AL, 35222,
Jan Findlay,
RN, MS, CS jfindlay@peds.uab.edu(205) 939-9588
(205) 939-6184
CALIFORNIA
HDSA Center of Excellence at
The University
of California
Davis Medical Center
4860 Y Street Suite, 3700
Sacramento, CA, 95817,
Terry Tempkin, RNC, MSN,
ANP
teresa.tempkin@ucdmc.ucdavis.edu(916) 734-6278
(916) 734-6525
HDSA Center of Excellence at
The University of California San Diego
Outpatient
Center, Third Floor Suite 1
200 West Arbor Drive
San Diego, CA, 92103,
Shirley Fenner, RN sfenener@ucsd.edu(858) 622-5800
(858) 622-1012
COLORADO
HDSA Center of Excellence at
The Colorado
Neurological Institute
701 East Hampden Avenue, Suite 530
Engelwood, CO, 80110
GEORGIA
HDSA Center of Excellence at
Emory University
School of Medicine
1841 Clifton Road
Atlanta, GA, 30329
IOWA
HDSA Center of Excellence at
The University
of Iowa Hospitals and Clinics
Psychiatry Research 1-145 MEB
Iowa City, IA, 52242,
Elizabeth Penziner elizabeth-penziner@uiowa.edu(319) 353-4307
(319) 353-3003
MARYLAND
HDSA Center of Excellence at
Johns Hopkins
Hospital
Meyer 2-181
600 North Wolfe Street
Baltimore, MD, 21287
MASSACHUSETTS
HDSA Center of Excellence at
Massachusetts General/Tewksbury Hospital
VBK, Fuit Street
Boston, MA, 2114
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MINNESOTA
HDSA Center of Excellence at
The Hennepin County Medical Center
701 Park Avenue South
Minneapolis, MN,
55415,
Beryl Westphal R. N., A. N.P-C
hcmc.hd.clinic@co.hennepin.mn.us
(612) 347-6024
(612) 904-4270
MISSOURI
HDSA Center of Excellence at
Washington University School of Medicine
660 S. Euclid Campus Box 8111
St.
Louis, MO, 63110
NEW YORK
HDSA Center of Excellence at
North Shore
University Hospital
444 Community Drive, Suite 206
Manhasset, NY, 11030,
Dennis Zgaljardic neurodjz@juno.com(516) 869-9527
(516) 869-9535
HDSA Center of Excellence at
Columbia Health Sciences/
New York
State Psychiatric Institute
1051 Riverside Drive
New York, NY, 10032
HDSA Center of Excellence at
The University of Rochester
919
Westfall Rd, Buldg C. Suite 220
Rochester, NY, 14618,
Leslie Briner lbriner@mct.rochester.edu(716) 273-4147
(716) 341-7510
OHIO
HDSA Center of
Excellence at
Ohio State University Medical Center
1645 Upham Drive, Means Hall 4th Floor
Columbus, OH, 43210,
Karen Betcher, RN kostyk.10@osu.edu(614) 247-6851
(614) 293-4974
TEXAS
HDSA Center of
Excellence at
Baylor College of Medicine
6550 Fannin, Suite 1801
Houston, TX,
77030
The University of Virginia
500 Ray C. Hunt Drive
Charlottesville,
VA, 22903
The University of Washington Medical Center
1959 NE Pacific Street
Seattle,
Wa, 98195
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