Click on map for yellow pages
 Missouri HDSA Chapter
Serving Missouri, parts of Kansas and Illinois
Webster
Groves, MO 63119-5325
Phone: (314) 961-4372
Peggy Cribbin
Social Worker:
Contact: Melinda Kavanaugh, MSW
Phone: 314-362-3471
HDSA Center of Excellence
Washington University
School of Medicine
660 S. Euclid Campus Box 8111
St. Louis, MO,
63110
Hours: Monday-Friday 9-5
Services: Social services, occupational
therapy, support group, physical therapy,
and excercise class. Also neurologists,
neuropsychiatrists, and genetic counselors,
and we do genetic testing at the center.
Appointment: (314) 362-6908 or
Director: Joel Perlmutter, M.D.
Contact: Melinda Kavanaugh, MSW
Phone: 314-362-3471
Fax:
314-362-0168
HD Clinical Studies: B. Racette
Phone: (314) 362-7148
Physicians:
Black, Kevin J., M.D.
Racette, Brad A., M.D.
Revilla,
Fredy J. , M.D.
(See Centers website for physician bio's)
Website:
Website has physician bio's, clinical trials
and research taking place at CoE.
Genetic Testing
University of Missouri Hospital
Division of Medical Genetics
Columbia,
MO 65121
Contact: Robin Troxell, MS,
Genetic Counselor
Phone: (573) 884-6735
Fax:
(573) 884-3543
Physicians
HD Experienced
Kwee, Liu Lin Thio, PhD
(click above for bio, insurance, etc.)
St. Louis Children's Hospital
Department of Pediatric Neurology
The hospital is affiliated with the HDSA Center of Excellence at Washington Univ.
Other Information
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benefits that you may be eligible to receive.
Insurance Consumer Guides for Getting and Keeping Health Insurance - A guide for each state and the District of Columbia - fifty-one in all. The Guides summarize your
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Special Notices
Support Group Meetings
Cape Girardeau, MO
To Be Determined, Call For Info.
Contact: Sandra
Phone: toll free 866-707-4372
Participants: All associated with HD
Independence
When: Call for details
Time: 6:30 - 8:30
Where: Maywood Baptist Church
10505
E Winner RD
Independence,
MO.
Contact: Misty Lehman
Phone: 816-254-9313
Email:
crazywith2@hotmail.comAll individuals with an interest in Huntington's Disease are invited to attend. Child
care will not be provided.
St. Louis
When: 3rd Tuesday of month
Time: 7:00 p.m.
Where:
The Heights
8001
Dale Avenue
Richmond
Heights
Nursing Homes
HD Experienced
Monterey Park Nursing Center
4600 Little Blue Parkway
Independence,
Mo. 64015
Phone: 1-816-795-5613
Has 2 HD patients
Lathrop Health Care Center
702 Center Street
Lathrop,
MO 64465
Phone: 816-528-4257
IHS of St. Louis at Big Bend
Woods
110 Highland Ave.
Valley Park - MO - 63088
Phone: 314-225-5144
Fax: 314-225-8427
Contact: Darryl Powell
Certified: Medicaid/Medicare
Total Number of Beds: 176
Parklike setting, friendly staff, clean, visitors allowed 24/7, therapies, neurocable, pets allowed, etcHD patients who are not at a risk
of fleeing (ie no lock down facilities).
Spring Place Care Center
3450 Russell
St. Louis, MO
Phone:
(314) 772-9100
HD Patients: Has 1 54 year old male patient with HD as of May 2002
Warrenton Nursing & Rehabilitation
Highway
AA
Warrenton MO 63383
Phone: 636-456-8700
State Long Term
Care Ombudsman
Missouri
State Long-Term Care
Division on Aging
Department of Social Services
P.O. Box 1337
615
Howerton Court
Jefferson City, MO 65102-1337
Phone: (573) 526-0727
FAX:
(573) 751-8687
State Resources
Misc. State Support
United Way-Search By Zip Code will provide you with information on the United Way in your area.
If they have a website, they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick
Guide" (To Human Services) help in your area. You can print it out. Most guides are in PDF format and are a great
resources to have on your refrigerator! |
