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Click on map for yellow pages
 Michigan HDSA Chapter
President: Robert W. Lentner
Email:
RRLent@concentric.net
Phone:
(517) 646-0920
Fax: (517) 646-0885
Address:
4000 N. Michigan Road
Dimondale, MI 48821-9774
Help Line
(800) 909-0073
Newsletter: Bridges of Hope (on website)
Brenda Francis
Phone: 1-800-909-0073
Patient/Family Services Chair
Ruth Lentner
Phone: (989) 835-9933
Services:
Self
supporting through volunteers and grants, patient/family services and education.
Physicans/Specialists
HD Experienced
Ann Arbor
Appointments are by: Physician Referral Only
To make an appointment call: (734)764-6831
TTY: (800)649-3777
Physicians:
Co-Director, Movement Disorders Clinic
Clinical Assistant Professor
University of Michigan
1500 Medical Center Dr.
Taubman Center, 1914/0316
Ann Arbor, MI 48109/0316
Appointments: 734-936-9020
Information: 734-936-9010
Fax
734-763-6545
Clinic visit includes comprehensive clinical evaluation, review of any outside studies, and suggestion of further diagnostic
and management plans
Appointments: 734-764-8631
Fax: 734-647-8535
Early-onset, rapidly progressive, and familial dementias are particularly appropriate for this clinic.
Detroit
Wayne State University
School of Medicine Dept. of Neurology
University Health Center 8A
4201 St. Antoine
Wayne State University
Detroit, Michigan
48201
Phone: (313) 577-1249
Fax: (313) 745-4216
and
Wayne State University
The John D. Dingell VA Medical Center
4646 John R
Detroit, MI
48201
Phone: 313-576-1000
Speciality: evaluation, diagnosis and management of hereditary movement disorders including Huntington's
Farmington Hills
Michigan Institute for Neurological Disorders
28595 Orchard Lake Road - Suite 200
Farmington
Hills, MI 48334-2977
Tel: 248-553-0010
Fax: 248-553-0818
Click here for:
Specialities: As neurologists, our physicians are highly trained to treat disorders of
the nervous system including diseases of the brain, including child neurology and psychiatrt. We offer a
multitude of diagnostic procedures in our offices. We have our own CT scan, MRI, and x-ray machines on site for your convenience.
Southfield
Sinai Hospital
Clinical Neuroscience Center
26400 West Twelve Mile Road, Suite 110
Southfield,
MI 48034
Dr. Trosch
Phone: (248) 355-3875
FAX: (248) 355-3857
Note: Dr. Trosch is with the Parkinson's Disease and Movement
Disorders Center and has been recommended by Janet Howse. The center is attached to Beaumont Hospital, which is the leading
movement disorders hospital in the state. Dr. Trosch he sees about 1 patient with HD a week, from all
over the state.
Janet Howes, MSW, LICSW
Private Practice Clinical Social Worker
Address: NEED
City: NEED
Phone: NEED
Hours of Operation: NEED
(formerly of the Michigan HDSA Chapter)
Genetic Testing Facilities
University of Michigan
Molecular Medicine and Genetics Clinic
4301 MSRB III
Box 0638
Ann Arbor, MI 48109-0638
Contact: Wendy Uhlmann, MS
Phone:
(734) 763-2532
Fax: (734) 763-7672
Website:
Genetics Department
Butterworth Genetics Services
21 Michigan NE Suite 465
Grand Rapids, MI 49503
Contact:
Kathleen Delp, MSW
Phone: (616) 391-8664
Fax:
(616) 391-3114
School of Medicine
Department of Neurology
University Health Center 8A
4201 St. Antoine
Detroit,
MI 48201
Appointments: (313) 745-4275
Genetic Counselor:
Karen Krajewski , MS
(313) 577-1689
Services: Testing and couseling is available for those who are at risk for,
but do not yet manifest symptoms of a disease. Prenatal testing for some disorders may be possible once it is established
through molecular testing that a couple is at risk for passing a genetic condition to a child.
ACLF/Nursing Homes
Need your input on HD experienced facilities
State Long-Term Care Ombudman
MichiganState Long-Term Care
Citizens for Better Care
6105 West Saint Joseph
Highway, Suite 211
Lansing, MI 48917-3981
Phone: 517-886-6797
Fax:
517-886-6349
toll free: 1-800-292-7852
Assisted living facilities are not licensed by the state. If you are looking for a licensed facility for
assisted living you may wish to consider a licensed adult foster care facility. The Michigan Department of Consumer and Industry
Services is home to the Division of Adult Foster Care (AFC) Licensing which provides a web based statewide search tool for Adult Foster Care Facilities. You can either enter regional search criteria to locate facilities or use a state
map.
State Resources
Abuse
Adult Protective Services-The goal of the APS Program is to assist those persons 18 years or older who have been abused,
neglected, or exploited and who are vulnerable and unable to take the necessary steps to correct their situation.
Children's Protective Services -In Michigan, the Family Independence Agency is responsible for investigating reports of suspected
child abuse and neglect
Aging/Seniors
Assistive Technologies
Children
Juvenile Justice -The Bureau of Juvenile Justice encompasses a range of prevention, rehabilitation and correctional
services to juvenile offenders ages 12 through 20.
Trust
Fund For Children With Special Needs -Helps pay for services and projects for children with special health care needs not provided by
other health care funds. When a child needs special services or equipment and has no other source of payment, the Trust Fund
may help. Some examples are wheelchair ramps, surgical repair of congenital anomalies, therapeutic tricycles and partial support
for van lifts.
Estate Planning
Burial
Expenses - SER assists with burial when the descendants estate, mandatory copayments, etc. are not
sufficient to pay
CarePlanner- is a decision support tool for successful living and care choices. It is for seniors, physically
disabled and individuals who have a chronic illness and need supportive services, and mature adults who like to plan ahead.
End of Life-The Michigan Physician Guide to End-of-Life Care
Finding a financial planner-Financial Planners offer advice on taxes, estate planning, insurance, educational funding for
your children, real estate and investments, including securities
Representative Payee-A representative payee has the authority to cash an SSA/SSI check and use it for the adult's
benefit
Family
Click on Map for FIA County Office Information
Financial Support
Cash Assistance For Disabled Adults
- SDA - a program for individuals who are disabled or the caretaker of a disabled person. SDA groups
will consist of either single individuals or spouses living together. A person is disabled for SDA purposes if he/she: (see
website)
Family
Independence Program - provides cash assistance to eligible families with children. A family with income may be
eligible if the income is less than the family's needs by FIP standards. For the location in your county, click here:
FIA Locations
FAP
Eligibility Requirements - for food assistance depends on the financial situation of all persons who live
together and purchase and prepare food together.
Food Banks-The Food Bank Council of Michigan is a statewide charitable organization gathering food and funds
to help stock the shelves of its member food banks.
Home Repairs-SER assists with home repairs to correct unsafe conditions and restore essential services.
Eligible home repairs may include repair or replacement of a non-functioning furnace, hot water heaters or septic systems.
The repair(s) must restore the home to a safe, livable condition. SER does not pay for improvements or nonessential repairs.
is a pre-screening tool that allows you to find programs offered by the State of Michigan
that may help families in need with assistance for medical, nutritional, food, day care, temporary cash or other expenses.
Click here for more information.
Home Services
MI Choice Waiver Program-Through this program, eligible adults who meet income and asset criteria can receive Medicaid-covered
services like those provided by nursing homes, but can stay in their own home or another residential setting. |
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Volunteer Needed To Be Michigan's
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Special Notices
Support Group Meetings
These group meets to share their experiences, strengths and hopes in order to solve common problems
and to let you know that you are not
alone in coping with Huntingtons Disease. If you want to learn more about HD or have questions or want to share your
views, you will be welcome. See Michigan Chapter website for driving directions. Support Groups
When: 2nd Thursday of the month
Time: 7:00PM
Where: St. Joseph Hospital
5301 E. Huron River Dr.
Education
Building Parking Lot P
Ypsilanti, MI
Contact: Doug Cameron
Phone: 734-677-0258
Clare
When: 2nd Tuesday of the month
Time: 3:00PM
Where: Tendercare of Clare
600
S.E 4th Street
Clare,
MI
Contact: Ruth
Phone: 989-835-9933
Detroit Area
For information
Contact: Gery Wieske
Phone: 810-463-1889
Genessee County Area
Where: Genesys Regional Medical Center
West Flint Campus
Conference Center
Bld
Board Room 2nd
Floor
3921 Beecher
Rd
Flint, MI
Contact: Jean
Phone: 810-659-4548 or Shelia 810-793-7132
Contact: Larry
Lawrence Education Center
Rm 123
1521 Gull
Rd
Kalamazoo, MI
Phone: 616- 381-7725 or Marion 616-763-9901
Where: Sparrow Dimondale Center
4000 N. Michigan Road
2nd Floor of Homeward Bound Bldg.
Dimondale,
Mi.
Contact: Ruth
Phone: 800-909-0073
Macomb County Caregiver Group
When: 2nd Tuesday of the month
Time: 7:00PM
Where: 33894 Lakewood
Sterling Heights, MI
Contact: Christine
Phone: 810-268-7014
Marlette
When: 4th Friday of the month
Time: 7:OOPM
Where: Marlette Hospital Community Building
Address: 3270 Wilson
Marlette, MI.
Contact: Ruth Lentner
Phone: 989-835-9933 or Jeannette 989- 635-7142
Menominee
When: 1st Saturday of the month
Time: 1:00PM
Where: Community Covenant Church
1123 13th Street
Menominee, MI 49858
Contact: Chris :
Phone: 906-863-6051 or Greg 715-789-2526
When: 2nd Tuesday of the month
Time: 7:00PM
Contact: Ann
Phone: 989-561-5023
Royal Oak
When: 4th Tuesday of the month
Time: 7:00PM
Where: Wm Beaumont Hospital
Admin. Building
Conf Room A/B/C
3601 West 13 Mile Rd
Royal Oak,
MI
Contact: Ruth
Phone: 989-835-9933
Taylor & Downriver
When: 1st Friday of the month
Time: 7:00PM
Where: Heritage Hospital
10000 Telegraph Rd
Taylor,
MI
Contact: Betty
Phone: 734-947-1058
Traverse City Area
When: 4th Thursday of the month
Time: 7:00PM
Where: NW Michigan Blood Program
Conference Room
2575 Aero Park Drive
Traverse
City, MI.
Contact: Ruth
Phone: 989-835-9933
Tri-City Area:
Midland, Saginaw and Bay City
When: 1st Thursday of the month
Time: 7:00PM
Where: Sagniaw Township Hall
4980 Shattuck
Road
Saginaw,
MI
Contact: Ruth
Phone: 989-835-9933
State Resources-Home Services continued
Chore Services- are non-continuous household maintenance tasks intended to increase the safety of the individual(s)
living at the residence.
Durable Medical Equipment - includes devices, controls, or appliances specified in the plan of care which
enable the beneficiary to increase their ability to perform activites of daily living, or to perceive, control or communicate
with the environment in which he/she lives. This also includes items necessary for life support, ancillary supplies
and equipment necessary to the proper functioning of such items.
Friendly Reassurance - Make regular contact, through either telephone or in-home visits, with homebound older persons
to assure their well being and safety and to provide companionship and social interaction.
Friendly
Visitor - A volunteer who makes regular visits to homebound or isolated older persons
to provide companionship and social interaction.
Home Delivered Meals-provides at least one nutritionally sound meal per day to adults who are homebound and who do
not have friends or family to assist with meal preparation
Home Injury Control-Services such as personal emergency response systems (PERS) which aid in detection and notification
of home emergencies for frail and disabled persons.
Home Health Aide- Perform health-oriented services prescribed for an individual
by a physician. These services may include: assistance with activities of daily living (ADL), assisting with a prescribed
exercise regiment, supervising the individual's adherence to prescribed medication and/or special diets, changing the non-sterile
dressing, taking blood pressure, and other health monitoring activities.
Homemaker-Performance of routine household tasks to maintain an adequate living environment for adults with
functional limitations. Homemaking does not include the provision of chore or personal care tasks.
Home Repair-covers the permanent improvement to an older persons home to prevent or remedy a sub-standard
condition or safety hazard.
In Home Respite-provides companionship, supervision and/or assistance with activities of daily living (ADL) for
mentally or physically disabled and frail elderly persons in the absence of the primary care giver(s). To be eligible for
this service, clients must require continual supervision in order to live in their own homes or the home of a primary care
giver. ADL includes personal hygiene and grooming, meal preparation and kitchen safety, homemaking and leisure pursuits.
Individual Assessment
and Monitoring-includes an initial assessment and periodic reassessments of clients of personal care and home
delivered meals programs. All assessments are conducted by a registered nurse. Assessments are used to determine eligibility
for personal care and home delivered meals.
Nutrition Counseling-provides individualized advice and guidance to persons who are at nutritional
risk (because of health and/or medication use or chronic illness) about options and methods for improving their nutritional
status. An assessment of need is first performed. The counseling service must be performed by a registered dietician. The
counselor will develop a nutritional plan of care. Nutrition counseling can be provided ion a variety of settings, including
a person's residence.
Personal Care-is the provision of in-home assistance with activities of daily living (ADL)
for an individual including assistance with bathing, dressing, grooming, toileting, transferring, eating, and ambulating.
Specialized Respite-provides a brief period of rest or relief from the day-to-day care giving
when the community client is either a dependent family member or primary caregiver. Either the dependent family member or
the primary caregiver must be sixty (60 years of age or older. Specialized respite services provide short-term, temporary
care and supervision to persons in their own homes or in out-of-home settings.
Telephone
Reassurance -Volunteer reassurance callers make regular contact with homebound older persons to assure their well being and
safety and to provide social interaction.
Hospice
Insurance
Medicaid primer course -health care coverage for low-income people and working families who qualify. This includes
families, children, women who are pregnant, and persons under the age of 21. It also offers help to people who are blind,
disabled or age 65 and over
Legal
Legal Hotline for Michigan Seniors toll free at 1-800-347-5297.
There is no charge for this service.
Long Term Care
Adult Community Placement-Provides assistance to individuals and families in locating and selecting licensed community care
facilities for people who can no longer live independently. Licensed care settings include Adult Foster Care (AFC) facilities,
Homes for the Aged (HA) and nursing care facilities
adult day care -Program participants must require regular supervision in order to live
in their own home or the home of a relative. They must require a substitute caregiver while their regular caregiver is at
work, in need of respite, or otherwise unavailable. In addition, they must have difficulty or be unable to perform without
assistance activities of daily living (ADL). They must be capable of leaving their residence, with assistance in order to
receive the service.
Counseling-Professional-level counseling services, including emotional support, problem identification and
resolution, and skill building, provided to older adults who are experiencing personal, social or emotional problems which
may be relation to psychological and/or physiological dysfunction.
Independent Living Services-Offers a range of Medicaid and non-Medicaid services to individuals of any age who require
consultation or assistance to maintain and maximize functional capacity within their own homes or other independent living
arrangements. A range of services are available without regard to income or assets upon request to individuals who need
assistance. Contact your FIA Locations
Independent Living/Senior Services-The Commission for the Blind provides assistance with Independent Living (I.L.) for Older
Blind Individuals. I.L. specialists provide evaluation, training and referral services to assist older blind individuals,
55 and older, in regaining or maintaining their independence.
Shopper's Guide to Long-Term Care Insurance-The National Association of Insurance Commissioners (NAIC) has written this guide to help you
understand long-term care and the insurance options that can help you pay for long-term care services.
Medical
Utilities
Heat and Utilities-Financial assistance may be provided to low-income households who meet eligibility requirements
when heating or electric service has been or will be shut off.
Home Energy Assistance (LIHEAP)-Federal funds are available from the Low Income Home Energy Assistance Program (LIHEAP) to assist
low income families with energy costs. |
Patient Advocate
Foundation listings by State: Ensuring equal access to health care to all Americans.
Find out what is available in your community. Information available on (to mention only a few from the entire list):
Children, Children's Health Insurance Programs, Community Referral, Disability Services, Financial Assistance, Food
Stamps, Health Care, Insurance, Legal, Medication/Drug Assistance and Special Needs
Private Fuel Funds
There are non-federal dollars available from local fuel funds, which frequently are
contributed by your neighbors when they pay their utility bill. Ask the state energy assistance office for the local phone
number of the fuel fund nearest your residence. |
State Resources-information or links related to Assistive Technologies, Disability Resources, Domestic Violence
Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services Quick Locators,
Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid Waiver Programs,
Social Security Offices, Summer Camp Programs, United Way~Local Support and more.
United Way-Search By Zip Code will provide you with information on the United Way in your area. If they have a website,
they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick Guide"
(To Human Services) for help in your area. You can print it out. Most guides are in PDF format and are a great
resources to put on your refrigerator! |
Applying For Government Benefits
Dental-Even if you cannot pay for dental care there are ways in which to receive help. Contact
the American Dental Association (ADA) (1-800-621-8099) to learn about dentists who assist individuals on fixed incomes by
offering their services at reduced fees.
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you
may be eligible to receive.
provides helpful forms to families living with Huntington's Disease to help organize their daily
caregiving needs. DOZENS of forms you can use everyday, most of them are in Word format for easy printing and sharing!
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HD Guidebooks, research, youth, chat rooms & more!
There is no way to cover all
of the issues one might possible need to consider when selecting insurance coverage. Provides information on Free Care, General
Information, Children, Claims & Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions
and more.
Michigan Consumer Guide for Getting and Keeping Health Insurance - A guide. The Guide summarize your protections, and so may not
answer all of your questions. It is not a substitute for legal, accounting, or other professional advice.
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