Applying For Government Benefits
Dental-Even if you cannot pay for dental care there are ways in which to receive help. Contact
the American Dental Association (ADA) (1-800-621-8099) to learn about dentists who assist individuals on fixed incomes by
offering their services at reduced fees.
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you
may be eligible to receive. |
There is no way to cover all of the issues one might possible need to consider when selecting
insurance coverage. Provides information on Free Care, General Information, Children, Claims & Insurance Rates, Life Insurance,
Long Term Care, Medicaid/Medicare and Pre-Existing Conditions and more.
PDF Document - Getting and Keeping Health Insurance - A guide. The Guide summarize your
protections, and so may not answer all of your questions. It is not a substitute for legal, accounting, or other
professional advice.
Locate Missing Records- families who have become responsible for another's affairs may need to request copies of lost records
needed to apply for benefits like Medicare or Medicaid, to make insurance claims, or to manage affairs. Resources in USA,
UK and Canada.
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Activities of Daily Living
Activities of daily living are a commonly used term in the health care and professional caregiving
world to describe a person's ability to care for him or herself. In a progressive disease, such as Huntington's, measuring
your loved one's Daily Living capabilities on a frequent basis (quarterly, semi-annually or annually) can provide you and
their primary care physician the ability to evaluate the severity of the changes and develop a plan of care that allows for
meeting both the physical and psycho-social needs of the care recipient.
Information covered on this link is resources which might
help HD families apply for Government and State disability benefits; how to estimate your benefits; makes appeals; how your
physician can assist you; and links to information for professionals such as HDSA Chapter Social Workers as well as other
resources. The information is designed to provide general advice only.
Communication Communication/Speech in Huntington's Disease. Currently have
descriptions of several things causing problems in HD such as Aphasia, Apraxia, Miscommunication, Cognitive Issues, plus many
more. More to be added when time is available.
Looking for prescription drug insurance? Find
information on prescription drug plans and plans. Look up any medication prescribed, check on Alternative medicines, and learn
about safety issues. Learn about the "sliding scale" if you don't have insurance. See the "New Drug Checklist-Q&A's",
"Keeping Track of Side Effects" Over-The-Counter stuff and more. Also excellent links to Rx Programs, Benefit Check Up, Medicare,
and discount pharmaceutical drug discount programs. Information contained on the individual pages of this site is provided
for your reference and convenience only.
Avoiding Probate, Conservator~Guardianship, Estate Planning, Living & Other Trusts, Wills
& Beneficiaries, Employment Issues, Financial Aids. Divorce Issues, Legal, Emergency Planning and more.
What Is A Feeding Tube? When To Consider One. Feeding Tube Decision in HD, Tube Feeding in
Advanced Stages of HD,Using Baby Foods, Oral & Dental Care, Jean Miller Articles & Checklist and a ton of resources
including charts to help in care.
This website provides helpful forms to families living with Huntington's Disease to
help organize their daily caregiving needs. It contains DOZENS of forms you can use everyday, most of them are in Word format
for easy printing and sharing! |
HD Medical DefinitionsAn accumulation of definitions I found which are sometimes used to describe symptoms
of/or tests for HD or discuss other diseases or condition which have symptoms similar to Huntington's Disease. The list is
very long, but interesting!
Huntington's Disease
Symptoms It is extremely important that you are familiar with all the possible symptoms, which might
be affecting the quality of life for the person with HD. The symptoms appearing in this section can either be related to Juvenile
Huntington's Disease, Huntington's Disease in adults, some other condition, or be caused by a side affect to medication(s).
This site is still being updated and developed.
Insurance There is no way to cover all of the issues one might possible need to consider when selecting
insurance coverage. Provides information on Free Care, General Information, Children, Claims & Insurance Rates, Life Insurance,
Long Term Care, Medicaid/Medicare and Pre-Existing Conditions and more. If you would like more information on a particular
subject, use one of the Search Engines to help you find it.
Information here is either directly about Juvenile Huntington's Disease, or other information,
which will hopefully be helpful to families who have a child with JHD or are concerned about their child having JHD. Information
from the old JHD site, which I can no longer access to make changes, is being moved here as time permits. When this is completed,
this site will be deleted.
Caregiving articles written by Jean Miller, Betty Ann McDorman, Louise Wilkinson and others
plus links to other articles.
There are quite a few articles that describe the various "stages" of HD.
This site provides a Compilation of The [all] Stages Of HD. There are some resources available at the end of "stage" plus
each one is in Word format for printing or sharing.
This section deals specifically with Swallowing problems associated with HD.
It covers the description of problems in swallowing, therapies and products, questions to ask/FAQS, articles written specifically
for HD, Safety & Warning Signs, brochures, special diets, the 5 levels of food consistency, testing procedures used to
determine swallowing capacity, and more. Many items are available in Word for printing or sharing. Additional information
and tips will be added as time permits. |
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