Click on map for yellow pages
 Virginia
HDSA Chapter
Washington Metro Area Chapter
President:
Murrey Jacobson
Phone:
(703) 204-4634
Help Line: (703) 323-1403
Fax:
(703) 573-3047
Address: 8303 Arlington Blvd.,
Suite
210
Fairfax, VA 22031-2900
Email:
Website: Unable to open
Newspaper: Published quarterly, not on line
Mission: Serve HD familes throughout metro DC area, Virginia and parts of Maryland offering two
support groups a month. We host a variety of fundraisers and are looking
to increase our for ways to better improve our outreach, our services and to help contribute to research. We always need
more volunteers. So please call if at all interested!
HDSA Center of Excellence
The University of Virginia
Fontaine Avenue Facility
500 Ray C. Hunt Drive
Charlottesville,
VA, 22903
For appointments for
any of the below services:
Contact: Pat Allinson M.S., C.G.C.
Movement Disorders Clinic:
Individuals who have symptoms of Huntington's Disease may be seen for a neurological examination by Dr. Madaline Harrison,
the director of the HD Clinic. Laboratory testing and other evaluations are performed as indicated.Neuropsycho-logical testing
is undertaken if warranted.
For an appointment
Contact: Dr. Harrison
Phone: (434) 924-5304
Toll free hotline: 1-866-290-4528
HD Clinic Schedule:
A full-day, multidisciplinary clinic for HD is open once a month. Services are available from Neurology,
Psychiatry, Psychology, PT/OT, Speech, Social Work, and Genetics at this time. It's usually on the 4th Monday, but the date occasionally
changes so please call first.
They
also offer a predictive testing program for at-risk
individuals, and also does some HSG-sponsored clinical trials.
Clinic Staff
John Zenker R.P.T., Physical Therapy
Carol Clerico, O.T.R., Occupational
Therapy
Patricia Ledbetter, Ph.D., Speech/Swallowing
Kenneth Cady, M.S.W., Social Work
Patricia Allinson, M.S.,
Genetics
Genetic Testing
Toll free hotline: 1-866-290-4528
Individuals who have a family history of Huntington's Disease may wish to know whether they have inherited the disorder.
A predictive testing program is available which follows the protocol recommended by the Huntington's Disease Society of
America.
In the predictive testing protocol, at-risk individuals are seen for psychological and genetic counseling, a neurological
examination, and neuro-psychological testing before genetic testing is performed.
Sample Consent Form
They also offer some HSG-sponsored clinical trials.
Physicians
Need your input
Look up doctors -
Professions License
Other Information
GovBenefits.gov is a screening tool provided by the federal government to help you find government
benefits that you may be eligible to receive.
Insurance Consumer Guides for Getting and Keeping Health Insurance - A guide for each state and the District of Columbia - fifty-one in all. The Guides summarize your
protections, and so may not answer all of your questions. They are not a substitute for legal, accounting, or other professional advice.
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Special Notices
When: Last Thursday most months
Time: 7 pm - 9 pm
Where: Goodwin House
Address:
City:
Contact: Chris Lederman
Phone:
703-698-7450 Ext. 375
When: Date Changes, please call.
Time:
Where: 424
Montgomery Avenue
Bethesda MD
Contact: Sara Lieberman
Social Worker
Phone: 301-439-6141
Email:
Participants: Individuals At-Risk
Charlottesville CoE
Support Groups:
Support
group meetings for patients and
caregivers are held once a month in conjunction with the HD Clinic.
Time: 12:30-1:30 p.m. and are open to all.
It is not necessary to have an appointment at the clinic in order to attend. An informational talk about a topic of interest
is given starting at 12:00 p.m. before the meetings begin. A schedule of talks and meetings is available f
Contact: Pat Allinson, M.S.
Phone: (434) 924-2665.
Toll-free helpline 1-866-290-4528
Serving Peninsula and Southside areas
When: 3rd
Friday of each month
Time: 7:00 PM
Where:
Mary Immaculate Hospital
2 Bernadine Drive
Newport News, VA
Contact: Yvonne Beyer
Phone: (757)
867-6794
Contact: Joyce Maltby
Phone: (757) 874-6385
Nursing Homes
HD Experienced
Need your input
State Long-Term Care Ombudsman
Virginia State Long Term
Care
Virginia Association of
Area Agencies on Aging
530 East Main Street, Suite 428
Richmond, Virginia
23219
Phone: (804) 644-2923
FAX: (804) 644-5640
VIRGINIA CAREGIVER HELP
local services database using the keywords:
respite care to find a variety of respite
services offered throughout Virginia.
State Resources:
certified by a licensed physician. The
relative receiving care, needs to have been cared for at least 6 months in the previous calendar year, though the six months
need not be consecutive. This program applies
to any individual regardless of age. This program is administered by the Virginia Department of Social Services
Misc. State Support
United Way-Search By Zip Code will provide you with information on the United Way in your area.
If they have a website, they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick
Guide" (To Human Services) help in your area. You can print it out. Most guides are in PDF format and are a great
resources to have on your refrigerator!
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