Huntington's Disease Support Information

Georgia

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0180a.gifGeorgia State Flag  Georgia
HDSA Chapter
President:    Joseph Aloisio
Email:           
jaloisio@mindspring.com  
Phone:         770-279-9207
Fax:               678-461-3518
Address:      PO Box 15298 
                     Atlanta, GA 30333
Website:     No longer active

HDSA SW Regional Dev. Director
Dwayne T. Patterson
3645 Market Place Blvd.
Suite 130 - PMB 288
East Point, GA 30344
Phone: 770-969-2896
Toll Free: 866-905 1116
Email:
dpatterson@hdsa.org

 
 
Support Groups
SPECIAL NOTICES
See HDSA's ->Calendar of Events
 
Huntington's Disease Society of America
HDSA Center of Excellence Support Group
When:   2nd Saturday of each month
Time:    11:57 a.m.
Where: Wesley Woods Health Center
              3rd Floor Conference Room
              1841 Clifton Rd.
              Atlanta , GA 30329
Contact:  TBD
Phone:    404-728-6822
For HD persons, HD families and caregivers. Call to be added to our mailing list.
Augusta Support Group:
When:     Last Tuesday of each month
Where:    Medical College of Georgia
                1429 Harper Street
                Augusta, Ga.
Contact:  Michelle
Phone:     706-231-2775 or
Contact:   Lisa
Phone:      706-721-2798.
Call for time. Open to those with HD, their family, friends and caretakers and those at risk.
Savannah - Lowcountry Support Group
When:    Last Tuesday of each month
Time:      6:00 p.m.
Where:   Candler Hospital Heart & Lung Building
               2nd Floor, Room 2
               5353 Reynolds St. (at DeRenne)
               Savannah, GA

Contact: Sandra Freyermuth
Phone: 912-964-0455
Email:
sandrafrey@aol.com
Devoted to improving the quality of life and affirming the dignity of HD families and caregivers by offering support and providing education to local health care professionals, and communities.
Medical
Center of Excellence
HDSA Center of Excellence at Emory University
Wesley Woods Health Center
1841 Clifton Rd.
Atlanta , GA 30329
Website:
http://www.med.emory.edu/ADC/
 
Clinic Director: Randi Jones, PhD
Phone: 404-728-6849
Fax: 404-728-4892
 
Co-Director: Claudia Testa, MD, PhD
Phone: 404-728-4957
Clinic: Meets 2nd and 4th Thursdays of the month.
About Clinic:
http://snipurl.com/ll34
 
Contact: Joan Harrison
Tel: 404-728-6364
Fax: 404-728-6685
Email:
jharri2@emory.edu
 
Appointments: 404-728-4957

Services include neurological evaluations, presymptomatic genetic counseling and testing, social services, nursing follow up and medical management, community education (nursing home in-services, talks to civic groups, health fairs), education of families either in person, by phone or mail.

HD Studies:
Miraxion (TREND-HD) summer of 2005
Coenzyme Q10 (2CARE) late 2005.

The Emory HD Clinic was established in 1988 to provide a focus for clinical care and research. The Emory program has grown to become one of the leading HD centers in the US, providing medical care, psychological and genetic counseling, and social services to HD families.  The Center is a partnership between the HDSA and the Emory HD Clinic with the goal of improving access to care and services for Southeastern HD families.

Huntington’s Disease/Parkinson’s Disease
Movement Disorder Clinic
Medical College of Georgia
1429 Harper Street
Augusta, GA 30912
Website:
http://snipurl.com/ll4v
 
Clinic Director - John C. Morgan, MD, PhD
Phone: 706-721-2798
Fax: 706-721-1115 FAX
Email:
jmorgan@mcg.edu
 
HD Clinic: 4th Thursday of each month
0180a.gif
Click here for driving directions
For PDF map of campus see: http://snipurl.com/ll4t
 
Appointments:
Contact: Tia Dent
Phone: 706-721-2798
 
Services: neurological evaluations, presymptomatic genetic counseling and testing, psychological evaluation, physical therapy, occupational therapy, speech pathology and nursing follow-up.

Studies:
Currently enrolling for a long-term observational study for HD persons and HD at-risk. It requires an annual FREE appointment and evaluation.
Contact: Lisa Woodward
Phone:    706-721-2798

The multidisciplinary HD clinic was established in 2004. Prior to moving to Augusta, Dr. Morgan was associated with the University of Virginia’s Neurology Department an HDSA Center of Excellence. He’s been named one of the best doctors in the Augusta area for several years in a row.

Other Resources
0180a.gifGeorgia State Website
 
ACLF/Nursing Homes
HD Experienced
Lake Crossing Health Center
6698 Washington Rd.
Appling, GA 30802

Phone: 706-541-0462
 
Georgia Long Term Care Ombudsman Program
Office of the State Long-Term Care Ombudsman
2 Peachtree Street NW, Suite 9-231
Atlanta, GA 30303-3142
Phone:  (888)454-5826; (404)463-8383
FAX:     (404)463-8384
 
Georgia Council of Community Ombudsmen
The LTC Fact Sheet index has invaluable
information on how to select long term
care facilities. www.gacoco.org/
Information on Assistive Technologies, Disability, Guardianships, Hospices, Medicaid, Medicare, Patient Advocacy groups, Social Workers, Social Security to United Way!
 
Click here  0180a.gifOther Resources
Information on Applying for Government Benefits, Disability & SSDI, Estate Planning, Financial Aid Resources, Insurance’s, Long Term care and Huntington's Disease specific resources