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Click on map for yellow pages.
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President:
Email:
Address:
Phone:
Toll Free
Fax:
Website:
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Kathy Hayman
5750 Picketts Lane
Pinson, AL. 35126
1-205-325-3877 or
1-205-856-2464
None | |
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Mobile
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When:
Time:
Where:
Contact:
Phone:
Email:
Forum: |
Call for information
Providence Hospital
Diabetes Center,
PMOP Suite D-36
6801 Airport Boulevard
Mobile, AL. 36685
Cindy Nelson
1-251-633-1984
Caregivers |
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Trussville & Guntersville
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When:
Time:
Where:
Contact:
Phone:
Email:
Forum: |
3rd Sunday of each month
2:30 - 4:00 PM
First Methodist Church
Trussville, Al.
Kathy Hayman
1-205-856-2464
Participants: All
(rotates monthly) |
Huntsville
When:
Time:
Where:
Contact:
Phone:
Email: |
4th Friday of each month
12:30 - 4:30
UAB Medical Center Complex
Huntsville
Kathy Hayman
1-205-856-2464
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Center of Excellence & Genetic Testing |
HDSA Center of Excellence
The University of Alabama
Birmingham
HD Clinic at the Children’s Hospital of Alabama
1600 7th Avenue South, CBH 314
Birmingham,
AL, 35233-1711
Clinic Location:
The Children's Hospital of Birmingham
Clinic #8
Center Director: Leon Dure, M.D
Appointments:
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Contact:
Phone:
Toll Free
Fax:
Email: |
Donna Pendley
1- 205-996-7850
1-800 309-HUNT
1-205-996-7867
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Area Covered: Besides Alabama, the referral base also includes
portions of Mississippi, Florida and Tennessee.
Hours of Operation: 4th
Friday of every month
Services: Clinic services include speech, physical, and occupational therapies: nutritional,
neurological and social services. The Center puts forth a great effort to ensure the best care for our patients. They
now provide noon conferences where patients, caregivers and their families are invited to have lunch and participate in discussion
and lecture from guest speakers that discuss issues of interest related to HD. |
Genetic Testing
Department of Genetics
University of Alabama at Birmingham
720 20th street South
Kaul
Building - Suite 241
Birmingham, AL 35294-0011
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Contact:
Phone:
Fax:
Email: |
Judy Franklin, RN, MSN
1-205-934-4983
1-205-975-6389
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Other Physicians - HD Experienced
Need your input |
NOTE: The majority of documents available
from the State, below, are in PDF format.
Abuse
-Elder Abuse Hotline 1-800-458-7214
ACL/Nursing Homes
Alabama Nursing Home
Association-Consumer Information:
Form 154 - Agreement between Nursing Home and Medicaid Patient (.pdf)
Form 204/205 - Application for Elderly & Disabled (nursing home, ICF/MR, Home and Community Based Waiver, and SSI-Related)
Caregiving/Respite
2505 Inverness Lane
Birmingham, Alabama 35242
(205) 991-0927 (866) RESTALA
Email:
alabamarespite@aol.com
-Find respite
in your area [AL]
information sites about respite for
caregivers.
agencies, and resources.
A sliding fee scale is used to determine the clients shared cost for certain services.
Cost sharing judgments are made based on the care recipients income. If the care recipients income falls below the national
poverty level, the client is not expected to pay anything for the services. In any case, contributions (donations)
are accepted by the Area Agency on Aging for all programs. Call Area Agency on Aging (1-800-AGE-LINE) and make an appointment
with the Alabama Cares Coordinator, who will explain the process.
home]
Community Care vs Nursing Home Care
Dental
Directories/Find
Disabilities
Phone (205) 823-3818 or (800) 433-8002
Equipment Loan
Program -Alabama STAR program provides short-term loans of assistive technology to persons with
disabilities who wish to try out different types of devices. This program also provides equipment loans to rehabilitation
professionals so they can better assess and evaluate persons with disabilities using technology.
Financial
Food Stamps-provides monthly benefits to eligible low income households to help buy the food. The eligibility
rules and benefit amounts, based on income and household size. Applications for the Food Stamp Program are available in all
county DHR offices.
Alabama Department of Human Resources
Food Stamp Division
50 North Ripley Street
Montgomery Alabama 36130
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Public Assistance is made up of two major programs which serve low income familiesa financial assistance program and a medical assistance program:
The Family Asssistance Program and the Medicaid for Low Income Families Program [below]. These programs provide temporary
cash assistance to eligible families. Public Assistance FAQs
Family Assistance Program
ACLF/Nursing Homes
HD Experienced
Need your input
Alabama State Long-Term Care Ombudsman
COMMISSION
ON AGING
RSA Plaza, Suite 470
770 Washington Avenue
Montgomery, AL 36130
Phone: (334) 242-5743
FAX:
(334) 242-5594
Hospice/End of Life
Alabama-Alabamians For Better Care at Life's End - 1801 14th Avenue South
Birmingham, AL 35205-4931
Phone: 205-975-9815
Fax: 205-975-8173
Toll Free: 1-877-594-5050
Form 165 - Medicaid Hospice Election and Physician's Certification
Insurance
Alabama HIPAA [Health Insurance Portability and Accountability Act]
Form 211 - Application for Medicare Savings for Qualified Beneficiaries
Medicaid for Low Income Families Program provides medical assistance for low income
families with a dependent child under age 18
Medication/Pharmacy
-Specialized Nutritional Products:
Mental Health
Huntsville Mental Health Clinic
Veterans
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Miscellaneous State Support |
Patient Advocacy Foundation State Locator
Ensuring equal access to health care to all Americans. Find out what
is available in your community. Information available on (to mention only a few from the entire list): Children,
Children's Health Insurance Programs, Community Referral, Disability Services, Financial Assistance, Food Stamps, Health Care,
Insurance, Legal, Medication/Drug Assistance and Special Needs
Private
Fuel Funds
There are non-federal dollars available from local fuel funds, which frequently are
contributed by your neighbors when they pay their utility bill. Ask the state energy assistance office for the local phone
number of the fuel fund nearest your residence. |
A directory of official state, county and goverment websites
Select from the list of State Benefit Program Contributors to read more about each State's benefits. To
determine if you may be eligible to receive benefits you must select from the list of State Benefit Program Contributors and
then click "am I eligible?" to begin the questionnaire.
State Resources-information or links related to Assistive Technologies, Disability Resources, Domestic Violence
Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services Quick Locators,
Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid Waiver Programs,
Social Security Offices, Summer Camp Programs, United Way~Local Support and more.
United Way-Search By Zip Code will provide you with information on the United Way in your area. If they have a website,
they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick Guide"
(To Human Services) for help in your area. You can print it out. Most guides are in PDF format and are a great
resources to put on your refrigerator! |
Applying For Government Benefits
Dental-Even if you cannot pay for dental care there are ways in which to receive help. Contact
the American Dental Association (ADA) (1-800-621-8099) to learn about dentists who assist individuals on fixed incomes by
offering their services at reduced fees.
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you
may be eligible to receive. |
There is no way to cover all
of the issues one might possible need to consider when selecting insurance coverage. Provides information on Free Care, General
Information, Children, Claims & Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions
and more.
To Getting & Keeping Health Insurance. The Guide summarize your protections,
and so may not answer all of your questions. It is not a substitute for legal, accounting, or other professional
advice.
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Activities of Daily Living
Activities of daily living are a commonly used term in the health
care and professional caregiving world to describe a person's ability to care for him or herself. In a progressive disease,
such as Huntington's, measuring your loved one's Daily Living capabilities on a frequent basis (quarterly, semi-annually or
annually) can provide you and their primary care physician the ability to evaluate the severity of the changes and develop
a plan of care that allows for meeting both the physical and psycho-social needs of the care recipient.
Information covered on this link is resources which might help HD
families apply for Government and State disability benefits; how to estimate your benefits; makes appeals; how your physician
can assist you; and links to information for professionals such as HDSA Chapter Social Workers as well as other resources.
The information is designed to provide general advice only.
Communication
Communication/Speech in Huntington's Disease.
Currently have descriptions of several things causing problems in HD such as Aphasia, Apraxia, Miscommunication, Cognitive
Issues, plus many more. More to be added when time is available.
Looking for
prescription drug insurance? Find information on prescription drug plans and plans. Look up any medication prescribed,
check on Alternative medicines, and learn about safety issues. Learn about the "sliding scale" if you don't have insurance.
See the "New Drug Checklist-Q&A's", "Keeping Track of Side Effects" Over-The-Counter stuff and more. Also excellent links
to Rx Programs, Benefit Check Up, Medicare, and discount pharmaceutical drug discount programs. Information contained on the
individual pages of this site is provided for your reference and convenience only.
Avoiding Probate, Conservator~Guardianship, Estate Planning, Living & Other Trusts, Wills & Beneficiaries,
Employment Issues, Financial Aids. Divorce Issues, Legal, Emergency Planning and more.
What Is A Feeding Tube? When To Consider One. Feeding Tube Decision
in HD, Tube Feeding in Advanced Stages of HD,Using Baby Foods, Oral & Dental Care, Jean Miller Articles & Checklist
and a ton of resources including charts to help in care.
This website provides helpful forms to families living with Huntington's
Disease to help organize their daily caregiving needs. It contains DOZENS of forms you can use everyday, most of them are
in Word format for easy printing and sharing! |
HD Medical DefinitionsAn accumulation of definitions I found which are sometimes used to
describe symptoms of/or tests for HD or discuss other diseases or condition which have symptoms similar to Huntington's Disease.
The list is very long, but interesting!
Huntington's Disease
Symptoms
It is extremely important that you are familiar with all the possible
symptoms, which might be affecting the quality of life for the person with HD. The symptoms appearing in this section can
either be related to Juvenile Huntington's Disease, Huntington's Disease in adults, some other condition, or be caused by
a side affect to medication(s). This site is still being updated and developed.
Insurance
There is no way to cover all of the issues one might possible need
to consider when selecting insurance coverage. Provides information on Free Care, General Information, Children, Claims &
Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions and more. If you would like
more information on a particular subject, use one of the Search Engines to help you find it.
Information here is either directly about Juvenile Huntington's Disease,
or other information, which will hopefully be helpful to families who have a child with JHD or are concerned about their child
having JHD. Information from the old JHD site, which I can no longer access to make changes, is being moved here as time permits.
When this is completed, this site will be deleted.
Caregiving articles written by Jean Miller, Betty Ann McDorman, Louise
Wilkinson and others plus links to other articles.
There are quite a few articles that describe
the various "stages" of HD. This site provides a Compilation of The [all] Stages Of HD. There are some resources available
at the end of "stage" plus each one is in Word format for printing or sharing.
This section deals specifically with Swallowing problems associated
with HD. It covers the description of problems in swallowing, therapies and products, questions to ask/FAQS, articles written
specifically for HD, Safety & Warning Signs, brochures, special diets, the 5 levels of food consistency, testing procedures
used to determine swallowing capacity, and more. Many items are available in Word for printing or sharing. Additional information
and tips will be added as time permits. |
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