Click on map for yellow pages
Texas Affiliate of HDSA
Cheryl Lenheiser LMSW-ACP
P.O. Box 270261
Flower Mound, TX 75027-0261
1-800-910-6111 [Dallas area]
When: 1st Monday of month
Where: Towne Crier
Contact: Susan Kilpatrick
When: 4th Thursday of
Time: 7:00 pm until 8:30pm
Where: Seton Shoal
Phone: (512) 258-6567
Huntington's Disease Association of Texas
(not associated with the HDSA Chapter)
Time: Call for information
Where: Little Walnut Library
Contact: Peggy Maceo, Director
Phone (512) 453-6745
When: 3rd Tuesday of month
Where: Baylor Medical Center
In The Grapevine Center
for Continuing Education
1650 West College
Contact: Cheryl Lenheiser
Phone: (972) 724-1357
East Texas (Minneola)
Contact: C.T. Almand
Phone: (903) 473-3453
Greenville-Meetings have been disbanded
When: 2003: Jan. 19, March 16, May 18,
20, Sep 21 and Nov 16
Time: 1:00 to 3:00pm
Memorial Hermann NW Hospital
Conf Room A/Prof. Office Bldg.
Phone: (713) 798-5519
2003: Feb, May, August
Time: 11:00 am to 1:00pm
North Central Baptist Hospital -
Executive Dining Room
Address: 520 Madison Oak Drive
Contact: Gerleine Schoonover
Email: email@example.comPhone: (210) 691-0047
Center of Excellence & Physicians
HDSA Center of Excellence
Baylor College of Medicine
Huntington's Disease Clinic
6550 Fannin, Suite 1801
18th floor of the Smith Tower
Houston, TX, 77030
Contact: Lauren Tipton
Phone: (713) 798-5970
Joseph Jankovic, M.D.
Dr. William Ondo
Dr. Ronald Tintner
Dr. Madhavi Thomas
Katie P. Leonard, M.S.
Lois C. Friedman, Ph.D.
HD Experienced Other Cities
The University of Texas Medical Branch
301 University Blvd. JSA9.128
Tuesdays 1:00 pm to 5:00 pm
For appointments call:
For additional information contact:
Phone: (409) 772-2466
Neurologist: Tetsuo Ashizawa, M.D.
Professor and Chairman
Department of Neurology
Neuropsychologist: Vicki Soukup, Ph.D.
Both Dr. Ashizawa and Dr. Soukup currently see HD paitients.
Dr. Eric John Pappert, MD
PD & Movement Disorder Clinic
Department of Medicine
2379 NE Loop 410, Suite 12,
San Antonio, TX 78217
Appointments: (210) 656-2333
Clinic hours: Tuesday 12:00 - 5:00 PM
VA Neurologicaly Clinic: Monday mornings
Speciality: Neurologist, Psychiatry/Board Certified
Genetic Testing Facilities-Other
Medical Center of Dallas
Department of Genetics and Metabolism
1935 Motor Street
Contact: Gail Brookshire, MS
Phone: (214) 456-2357
Genetic Counseling Associates
14999 Preston D 212 #562
Contact: Karen Heller, MS, CGC
Certified Genetic Counselor
Phone: (972) 458-8699
Scott & White Clinic
2401 South 31st Street
Temple, TX 76508
Dr. Immken, MD, Geneticist
Phone: (254) 724-0722
7711 Louis Pasteur Drive
Oak Hills Medical Building,
San Antonio, TX 78229
Contact: G.A. Mengden, PhD
Fax: (210) 615-8239
Hospice Support Care
El Campo, Tx
Contact: Ms Ruth Kainer, RN
Nursing Homes HD Experienced
need your input
State Long-Term Care Ombudsman
Texas State Long-Term Care
Department on Aging
4900 North Lamar
Blvd., 4th Floor
P.O. Box 12786
Austin, TX 78751-2316
Phone: (512) 424-6840
Miscellaneous State Support
Patient Advocacy Foundation State Locator
Ensuring equal access to health care to all Americans. Find out what
is available in your community. Information available on (to mention only a few from the entire list): Children,
Children's Health Insurance Programs, Community Referral, Disability Services, Financial Assistance, Food Stamps, Health Care,
Insurance, Legal, Medication/Drug Assistance and Special Needs
There are non-federal dollars available from local fuel funds, which frequently are
contributed by your neighbors when they pay their utility bill. Ask the state energy assistance office for the local phone
number of the fuel fund nearest your residence.
A directory of official state, county and goverment websites
Select from the list of State Benefit Program Contributors to read more about each State's benefits. To
determine if you may be eligible to receive benefits you must select from the list of State Benefit Program Contributors and
then click "am I eligible?" to begin the questionnaire.
State Resources-information or links related to Assistive Technologies, Disability Resources, Domestic Violence
Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services Quick Locators,
Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid Waiver Programs,
Social Security Offices, Summer Camp Programs, United Way~Local Support and more.
United Way-Search By Zip Code will provide you with information on the United Way in your area. If they have a website,
they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick Guide"
(To Human Services) for help in your area. You can print it out. Most guides are in PDF format and are a great
resources to put on your refrigerator!
Activities of Daily Living
Activities of daily living are a commonly used term in the health
care and professional caregiving world to describe a person's ability to care for him or herself. In a progressive disease,
such as Huntington's, measuring your loved one's Daily Living capabilities on a frequent basis (quarterly, semi-annually or
annually) can provide you and their primary care physician the ability to evaluate the severity of the changes and develop
a plan of care that allows for meeting both the physical and psycho-social needs of the care recipient.
Information covered on this link is resources which might help HD
families apply for Government and State disability benefits; how to estimate your benefits; makes appeals; how your physician
can assist you; and links to information for professionals such as HDSA Chapter Social Workers as well as other resources.
The information is designed to provide general advice only.
Communication/Speech in Huntington's Disease.
Currently have descriptions of several things causing problems in HD such as Aphasia, Apraxia, Miscommunication, Cognitive
Issues, plus many more. More to be added when time is available.
prescription drug insurance? Find information on prescription drug plans and plans. Look up any medication prescribed,
check on Alternative medicines, and learn about safety issues. Learn about the "sliding scale" if you don't have insurance.
See the "New Drug Checklist-Q&A's", "Keeping Track of Side Effects" Over-The-Counter stuff and more. Also excellent links
to Rx Programs, Benefit Check Up, Medicare, and discount pharmaceutical drug discount programs. Information contained on the
individual pages of this site is provided for your reference and convenience only.
Avoiding Probate, Conservator~Guardianship, Estate Planning, Living & Other Trusts, Wills & Beneficiaries,
Employment Issues, Financial Aids. Divorce Issues, Legal, Emergency Planning and more.
What Is A Feeding Tube? When To Consider One. Feeding Tube Decision
in HD, Tube Feeding in Advanced Stages of HD,Using Baby Foods, Oral & Dental Care, Jean Miller Articles & Checklist
and a ton of resources including charts to help in care.
This website provides helpful forms to families living with Huntington's
Disease to help organize their daily caregiving needs. It contains DOZENS of forms you can use everyday, most of them are
in Word format for easy printing and sharing!
HD Medical DefinitionsAn accumulation of definitions I found which are sometimes used to
describe symptoms of/or tests for HD or discuss other diseases or condition which have symptoms similar to Huntington's Disease.
The list is very long, but interesting!
It is extremely important that you are familiar with all the possible
symptoms, which might be affecting the quality of life for the person with HD. The symptoms appearing in this section can
either be related to Juvenile Huntington's Disease, Huntington's Disease in adults, some other condition, or be caused by
a side affect to medication(s). This site is still being updated and developed.
There is no way to cover all of the issues one might possible need
to consider when selecting insurance coverage. Provides information on Free Care, General Information, Children, Claims &
Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions and more. If you would like
more information on a particular subject, use one of the Search Engines to help you find it.
Information here is either directly about Juvenile Huntington's Disease,
or other information, which will hopefully be helpful to families who have a child with JHD or are concerned about their child
having JHD. Information from the old JHD site, which I can no longer access to make changes, is being moved here as time permits.
When this is completed, this site will be deleted.
Caregiving articles written by Jean Miller, Betty Ann McDorman, Louise
Wilkinson and others plus links to other articles.
There are quite a few articles that describe
the various "stages" of HD. This site provides a Compilation of The [all] Stages Of HD. There are some resources available
at the end of "stage" plus each one is in Word format for printing or sharing.
This section deals specifically with Swallowing problems associated
with HD. It covers the description of problems in swallowing, therapies and products, questions to ask/FAQS, articles written
specifically for HD, Safety & Warning Signs, brochures, special diets, the 5 levels of food consistency, testing procedures
used to determine swallowing capacity, and more. Many items are available in Word for printing or sharing. Additional information
and tips will be added as time permits.