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Click on map for yellow pages.
Arkansas HDSA
Chapter |
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President:
Email:
Phone:
Fax:
Address:
Website:
Hotline
Counselor
Email:
Newsletter |
Jeanie Funkhouser
800-558-3370
501-791-0309
P.O. Box 556
Morrilton, AR 72110
None listed
Quarterly Newsletter: Support from Neurologist at UAMS,
video and educational sessions. |
Special Notices
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Support Group Meetings
Call 1-800-558-3370 [unless otherwise noticed] and leave a message for
questions about any Arkanas support groups.
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Region 1,2 & 3
Ft. Smith, Salem and Pine Bluff Regions
Call for info. |
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When:
Time:
Where: |
Region 4 SW AK
Call for info.
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When:
Time:
Where:
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Region 5 - Little Rock
Saturday
2:00 - 4:00
8103 Westword
Little Rock, AR. |
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When:
Time:
Where:
Phone: |
Region 5A Conway
Saturday
2:00 - 4:00
Conway
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Genetic Testing
University of Arkansas
Medical School
800 Marshall Street Slot 512-22
Little
Rock, AR 72202-3591
Contact: Dr. Mary Curtis
or Marianne Lotito,
MS
Phone: (501) 320-2966
Fax: (501)
320-1564
Physicians
University of Arkansas Medical School
Department of Neurology
Outpatient Center, Third Floor
4301 West Markham Slot 547
Little Rock, Arkansas 72205
Phone: (501) 686-5135
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University of Arkansas for Medical Sciences
Dept. of Neurology- UAMS
Little Rock, AR 72205
Phone: (501) 686-8000
Fax: (501) 686-8689
Assistant Professor of Neurology
Services: Clinic sees patients with
tremor, involuntary movements, and gait difficulty. Conditions with such symptoms include
Huntington's disease, chorea, etc.
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Arkansas Search Sites
ACLF/Nursing
Homes
Need your personal recommendations.
State Long Term Care Ombudsman
Program
Arkansas State
Long-Term Care Ombudsman
ARKANSAS DIV.
AGING & ADULT SERVICES
P.O Box 1437, Slot 1412
Little Rock,
AR 72201-1437
Phone: (501) 682-2441
FAX: (501) 682-8155
ARKids First health insurance
English: 888-474-8275
Spanish 800-482-8988
Provides health insurance to children who otherwise
might not get medical coverage, offering low-income children a comprehensive benefits package.
Alternative Community Services
(Home & Community Based) 1-501-730-9987
Medicaid-funded Waiver program that offers
an array of services to persons with
developmental disabilities in their homes
and communities.
1-501-682-2277
Services children with chronic illness,
handicapping conditions, or special health
care needs.
Commodity Distribution Program
1-800-467-3663
Spanish 800-482-8988
A statewide program available to clients 18
and older who are endangered and unable to comprehend their danger.
Developmental Day Treatment Clinic
1-870-268-2231
Provides Medicaid-funded clinic-based services to adults and children with developmental disabilities.
Developmental Disabled - Service
Coordinators
1-501-682-8678 |
Div. of Mental Health - Services
Food
Assistance Program
1-800-467-3663
This program distributes commodities to
food banks, soup kitchens, shelters and
other nonprofit agencies.
Food Stamp Program 1-800-482-8988
Provides food assistance to eligible house-holds
to cover a portion of their food budget.
Integrate Support 1-501-682-7845
Offers a variety of services to children and
adults, that enable people to remain in their communities and reduce the need for institutionalization.
Medicaid
1-800-482-8988
Reimburses health care providers for covered
medical services provided to eligible needy individuals in certain categories.
Eligibility is determined based on income, resources,
Arkansas residency and other requirements.
Juvenile Diagnosis and Evaluation
1-501-682-1966
Am including this in case a
person with
Juvenile HD gets into trouble. This office
would be the one to provide information
to about Huntington's disease.
Low Income Home Energy
Assistance Program
1-501-682-8726
Provides financial assistance to help meet
the cost of home energy (gas, electric etc).
Medicaid Transportation 1-800-482-1141
Provides information on non-emergency
Medicaid transportation.
Nursing Home
Involuntary Discharge Appeals
1-501-682-8320
When a resident
of a long-term care facility feels lthat they are being unfairly or illegally discharged from a facility, they can utilize
the Involuntary Discharge Appeal process.
Rehab Click to find out about the
20 state-wide offices for persons with physical, mental, cognitive or sensory disabilities.
Those that wish to apply must
first contact a rehabilitation counselor, there is one assigned
to each of the state's 75 counties. Go
to website for addressees and contacts.
State Operated Residential Services
1-870-682-8678
Centers in Alexander, Arkadelphia,
Booneville, Conway, Jonesboro and Warren
Services include residential, habilitation-rehabilitation,
medical, social work, occupational, physical. and speech therapies, psychology, and community development and outreach services.
Weatherization Assistance
Program
1-501-682-8722
Installs energy conservation materials and
appliances in the homes of low-income families annually to lower utility bills. |
Patient Advocacy Foundation State Locator
Ensuring equal access to health care to all Americans. Find out what
is available in your community. Information available on (to mention only a few from the entire list): Children,
Children's Health Insurance Programs, Community Referral, Disability Services, Financial Assistance, Food Stamps, Health Care,
Insurance, Legal, Medication/Drug Assistance and Special Needs
Private
Fuel Funds
There are non-federal dollars available from local fuel funds, which frequently are
contributed by your neighbors when they pay their utility bill. Ask the state energy assistance office for the local phone
number of the fuel fund nearest your residence. |
A directory of official state, county and goverment websites
Select from the list of State Benefit Program Contributors to read more about each State's benefits. To
determine if you may be eligible to receive benefits you must select from the list of State Benefit Program Contributors and
then click "am I eligible?" to begin the questionnaire.
State Resources-information or links related to Assistive Technologies, Disability Resources, Domestic Violence
Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services Quick Locators,
Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid Waiver Programs,
Social Security Offices, Summer Camp Programs, United Way~Local Support and more.
United Way-Search By Zip Code will provide you with information on the United Way in your area. If they have a website,
they usually have a section called "How Do I Get Help?" Click on it and look for their "Quick Guide"
(To Human Services) for help in your area. You can print it out. Most guides are in PDF format and are a great
resources to put on your refrigerator! |
Applying For Government Benefits
Dental-Even if you cannot pay for dental care there are ways in which to receive help. Contact
the American Dental Association (ADA) (1-800-621-8099) to learn about dentists who assist individuals on fixed incomes by
offering their services at reduced fees.
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you
may be eligible to receive. |
There is no way to cover all
of the issues one might possible need to consider when selecting insurance coverage. Provides information on Free Care, General
Information, Children, Claims & Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions
and more.
PDF Document - Getting and Keeping Health Insurance -
A guide. The Guide summarize your protections, and so may not answer all of your questions. It is not a substitute
for legal, accounting, or other professional advice.
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Activities of Daily Living
Activities of daily living are a commonly used term in the health
care and professional caregiving world to describe a person's ability to care for him or herself. In a progressive disease,
such as Huntington's, measuring your loved one's Daily Living capabilities on a frequent basis (quarterly, semi-annually or
annually) can provide you and their primary care physician the ability to evaluate the severity of the changes and develop
a plan of care that allows for meeting both the physical and psycho-social needs of the care recipient.
Information covered on this link is resources which might help HD
families apply for Government and State disability benefits; how to estimate your benefits; makes appeals; how your physician
can assist you; and links to information for professionals such as HDSA Chapter Social Workers as well as other resources.
The information is designed to provide general advice only.
Communication
Communication/Speech in Huntington's Disease.
Currently have descriptions of several things causing problems in HD such as Aphasia, Apraxia, Miscommunication, Cognitive
Issues, plus many more. More to be added when time is available.
Looking for
prescription drug insurance? Find information on prescription drug plans and plans. Look up any medication prescribed,
check on Alternative medicines, and learn about safety issues. Learn about the "sliding scale" if you don't have insurance.
See the "New Drug Checklist-Q&A's", "Keeping Track of Side Effects" Over-The-Counter stuff and more. Also excellent links
to Rx Programs, Benefit Check Up, Medicare, and discount pharmaceutical drug discount programs. Information contained on the
individual pages of this site is provided for your reference and convenience only.
Avoiding Probate, Conservator~Guardianship, Estate Planning, Living & Other Trusts, Wills & Beneficiaries,
Employment Issues, Financial Aids. Divorce Issues, Legal, Emergency Planning and more.
What Is A Feeding Tube? When To Consider One. Feeding Tube Decision
in HD, Tube Feeding in Advanced Stages of HD,Using Baby Foods, Oral & Dental Care, Jean Miller Articles & Checklist
and a ton of resources including charts to help in care.
This website provides helpful forms to families living with Huntington's
Disease to help organize their daily caregiving needs. It contains DOZENS of forms you can use everyday, most of them are
in Word format for easy printing and sharing! |
HD Medical DefinitionsAn accumulation of definitions I found which are sometimes used to
describe symptoms of/or tests for HD or discuss other diseases or condition which have symptoms similar to Huntington's Disease.
The list is very long, but interesting!
Huntington's Disease
Symptoms
It is extremely important that you are familiar with all the possible
symptoms, which might be affecting the quality of life for the person with HD. The symptoms appearing in this section can
either be related to Juvenile Huntington's Disease, Huntington's Disease in adults, some other condition, or be caused by
a side affect to medication(s). This site is still being updated and developed.
Insurance
There is no way to cover all of the issues one might possible need
to consider when selecting insurance coverage. Provides information on Free Care, General Information, Children, Claims &
Insurance Rates, Life Insurance, Long Term Care, Medicaid/Medicare and Pre-Existing Conditions and more. If you would like
more information on a particular subject, use one of the Search Engines to help you find it.
Information here is either directly about Juvenile Huntington's Disease,
or other information, which will hopefully be helpful to families who have a child with JHD or are concerned about their child
having JHD. Information from the old JHD site, which I can no longer access to make changes, is being moved here as time permits.
When this is completed, this site will be deleted.
Caregiving articles written by Jean Miller, Betty Ann McDorman, Louise
Wilkinson and others plus links to other articles.
There are quite a few articles that describe
the various "stages" of HD. This site provides a Compilation of The [all] Stages Of HD. There are some resources available
at the end of "stage" plus each one is in Word format for printing or sharing.
This section deals specifically with Swallowing problems associated
with HD. It covers the description of problems in swallowing, therapies and products, questions to ask/FAQS, articles written
specifically for HD, Safety & Warning Signs, brochures, special diets, the 5 levels of food consistency, testing procedures
used to determine swallowing capacity, and more. Many items are available in Word for printing or sharing. Additional information
and tips will be added as time permits. |
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