New page title

Juvenile-HD

New page title

10 The Most Commonly Asked Questions

Clinical Trials & Research

Huntington's Disease~WeMove Info

Advocacy/Donations/Press Info

Clinical Definitions-Terminology

Facing HD~Family Handbook

JHD Handbook-Chapter 1

JHD Info-Stanford Univ.

Physician's Guide To HD

Caring for People with HD

Physical & Occupational Therapy In HD

Understanding Behaviour in HD-Dr. Jane Paulsen

Understanding Behavioral-Dr. Edmond Chiu

Advanced Stages Caregivers Handbook

Activities of Daily Living-HD

Unified HD Rating Scale (UHDRS) Motor Section

Westphal Variant

SECTION 1 - At Risk

At Risk For HD-What Next?

Q&A On Risk of Inheriting JHD

Testing Children

Best Interest of Child?

Parent Hasn't Tested?

Food For Thought

Age & Probability Chart

At-Risk Checklist

SECTION 2 - Genetic Testing

Genetic Testing for HD

Genetic Counseling-In General

Psychological Impact

Intro: Genetics/Genetic Testing

Prenatal & Preimplanation

Prenatal Testing-In General

o Genetic Testing Resources

o Personal Stories

SECTION 3 - JHD

Age of HD Appearance

Children of Parents With HD

Child~Parent Ill

Clinical Description JHD

What Kids Are Saying-HD

JHD-Duration of Illness

JHD-Clinical and Research

Parenting With HD

Patients/Families Coping

Talking With Children About HD

o JHD Resources

SECTION 4 - Possible Symptoms

o Parent Resources

8 Fears of A Chronic Illness

Anxiety/Apathy/Irritability~HD

Anxiety, Fears & Phobias

Apathy-Physician's Guide

Attention-Perceptual/Unawareness Physician's Guide

Behavior Management

Bi-Polar Disorders

Botulinum toxin therapy

Child Abuse-Reconizing Signs

Chorea-Physician's Guide

Cognitive/Decision Making/Impulsivity

Cognitive-Short Tips

Communication Problems

Communication Strategies For HD~Jeff Searle

o Communication Resources

Dehydration-Physician's Guide

Depression~Physician's Guide

Depression-Understanding It

Depression-How To Help

Depression - Treatment Resistant Patient

o Depression-Other Resources

-Read If Your Child Is On Antidepressant

Disgust - Impaired Recognition in HD

Dissociative disorders

Driving - Physician's Guide

o Dyslexia Resources

Dystonia/Rigidity & Spasticity Physician's Guide

Dystonia-Predominant Adult-Onset HD

Epileptic Seizures and Epilepsy

Epilepsy-Seizures~PG

-Seizures ~Special Populations

- Subdural Hematoma Risk In HD

Fevers - Unexplained

Fevers, sweating & menstural cycles in HD

HD Principle Treatments

Hallucinations/Psychosis~PGHD

Hand muscle reflexes in HD

Hypothalamus - A Personal Theory

Insomia ~Physician's Guide

Irritability~Temper Outburst Physician's Guide

Learning Disability

Mania/OCD~Physician's Guide

Myoclonus (Movements)

Nails-What To Look For

Nutrients: Some Possible Deficiency Symptoms

Obsessive Compulsive OCD

Personality disorders

Pneumonia-Advanced Stages

- Aspiration Pneumonia

Prosody - Social impairment in HD

Sexuality~Physician's Guide

Skins Sensitivity

Sleep Disorders

Smoking-Physician's Guide

Swallowing & Nutrition Physician's Guide To HD

Nutrition and HD~Anna Gaba (Recipes)

Nutrition Information In HD~Naomi Lundeen

Speech & Swallowing~Lynn Rhodes

Swallowing & Nuitrition Resources

5 Swallowing Problems

Swallowing Warning Signs

HD & Diet~HSA Fact Sheet 7

Taste changes in HD

-Feeding Tubes~Advanced Stages of HD

-Feeding Tube~Jean Miller

-Feeding Tubes: One More Word ~Jean Miller

-Feeding Tube~Dental Care

-Feeding Tube Instructions~Jean Miller

-Feeding Tubes & Baby Foods

-Feeding Tube Resources

Why Certain Symptoms Occur

-Symptom & Treatment Resources

SECTION 5 - Therapies

Physical Therapy In HD

Finding a Therapist - Behavoir

Speech-Language Therapy

o Easter Seal Therapies & Resources

o Therapy Resources

SECTION 6 - Medications Please Read

Medications-Movement Disorders

Adolescents Under 25

Antidepressant Adverse Effects

Anti-psychotic Medications

Anxiety-Antidepressant Medications

New page title

Haldol/Haloperidol - Clinical Medication Sheet

Haldol~Clinician Description

Haldol-HD Patient Experiences

Haldol~ Patient Handout

Mood Stabilizers: Dosing & Target Symptoms

Neuroleptic malignant syndrome

Olanzipine-Risperidone & blood tests

Prozac, Luvox, Paxil, Zoloft & Celexa

Psychiatric ~ Children

Spasticity Meds/Treatments

SSRI Medications

Tardive Dyskinesia

Weight Gain Medications

Weight Gain Medications

Sertraline ~Zoloft

Cutting Prescriptions

Sites That Help the Medicine Go Down

Vitamin & Mineral Deficiencies

o Drug Info Resources

-Medication/Emergency Forms

SECTION 7 - Surgery

Surgery-Movement Disorders

o Surgery Resources

SECTION 8 - Procedures

CT Scans, MRI's etc.

Swallowing Tests

Tests Commonly Used

o Procedures Resources

SECTION 9 - Alcohol/Drugs

Alcohol-Parent's Guide

Alcohol-Talking To Your Child

Drugs-What To Do?

Drugs-Talking To Your Child

Disciplining-Ages 0-13 & Up

SECTION 10 - Suicide

Straight Talk On Suicide

Teen Suicide-You Need To Know

o Suicide Resources

SECTION 11 - Divorce

Divorce & Child Stress

Tips For Divorcing Parents

SECTION 12 - Disabilities

Caring-Child & Medical Technology

Caring for a Seriously Ill Child

Child Long Term Illness

Disability-Special Education Plan

o Disability Resources

Special Needs Resources

Financial Planning

Finding A Special Needs Camp

Special Needs Camp

SECTION 13 - Assisstive Help

Child Assistive Technology

Resources For Adaptive Equipment

SECTION 14 - Emotional

Signs of Unhealthy Self-Esteem

Emotional Behavior Links

o Emotional Support Resources

SECTION 15 - Grief

Helping Child Deal With Death

o Grief Addtional Resources

SECTION 16 - ADD/ADHD

ADD/ADHD Research Articles

Conduct Disorders

Understanding AD/HD

ADHD FAQS & Related Info

o ADD~AD/HD Resources

SECTION 17 - Support

HD Support Groups

National Youth Association

SECTION 18 - Links

Helpful Forms-Info

Related Resources

Tips For Friends

SECTION 19 - Benefits

-No Insurance? Try Siding Scale Savings

Medicare-Medicaid

-Social Security-Benefits For Children With Disabilities

SECTION 20 Articles

SECTION 21 - Caregiving

Caregiver's Handbook

Ten Tips For Family Caregivers

Useful Tools For Caregivers

Prepare For & Prevent Home Emergencies

Getting Respite Care or Extra Help At Home

"First Shift With A Person With HD"

Symptom Management

Caregiver Self-Assessment

SECTION 22 - My Experiences

Our Personal Experience

Coping At The End

Kelly E. Miller

Letter From My Heart

Enter subhead content here

Enter content here

Enter supporting content here